I had an appointment today with Dr. C which lasted waaaaay longer than normal - an hour rather than 20 minutes (I feel sorry for the people with appointments behind me). We're tweaking my meds again. And he's contacting a colleague that he'd like to have see me - a second opinion type thing on my meds.
But here's the fun part - while in my appointment, he got a phone call. A phone call from Mass General in Boston. They've agreed to take me as a patient for a consult. Only thing? I don't know when yet. Dr.C will be doing the scheduling - the appointment may be a month or two out - we don't know. But they agreed to see me, which is the hardest part of the whole process.
So it looks like I'll be going to Boston in the future. Go me!