Showing posts with label side effects. Show all posts
Showing posts with label side effects. Show all posts

Wednesday, October 1, 2014

It's been a bit . . .

So it's been almost 2 weeks since my last post. I haven't much felt like writing.

But I do today.

I've been on the Brintellix for around 3 weeks now. My anxiety had started to get bad 2 weeks ago and I was worried that it would get as bad as it was the last time I was on it. I've noticed, however, that over the last week the anxiety has lessened. It's there every once in awhile, but it's manageable and not terribly bothersome.

And that's good news, right?

Sad thing? The Brintellix isn't really helping my mood. Not like it did the last time I was on it. I've had one good day (last Sunday) - a day where I felt "normal", happy, and content with life. I was at work, it was busy, and I had fun. But every other day? Just like before going back on Brintellix.

What do those days look like?

An overall feeling of being "down". I'm withdrawn. I don't want to participate in life. I'd rather nap the day away so I don't have to feel what I'm feeling. And what I'm feeling is all muted - except for my anger. I'm quick to anger. Everything seems to irritate or annoy me. I want to be by myself - I don't want to interact with anyone - family included.

I'm doing what I can to counter these feelings - don't think I'm giving up, or giving in. I'm not. I'm forcing myself to be more positive and upbeat (I don't know how well that's working - I should ask friends and family about that). I'm not doing the negative things I used to do (catastrophizing, all or nothing thinking, shit like that). I'm trying my best to be mindful - to stay in the moment. I'm forcing myself to interact.

Here's the thing - I'm stable. I'm the most stable I've been in 3 years. I'm not having big swings. I'm not hypomanic, I'm not horribly depressed. Nope. Stable. And that's good. The last thing I need is to have a major swing and be hospitalized again. But this low level depression? I think that's my baseline. I think that I'm stuck here and that's just how it's going to be. I'll have a good day here and there and all the others I'm going to have to fight for. I really don't want to accept this, but I don't think I have any other choice.

But wait - there's more!

I've been trying hard to be more "present" at home, around hubby and son. I had been getting bad about ignoring them, taking them for granted, lashing out at them. And I've been trying to be better about it. I don't know how well I'm doing in that regard. Sadly, I've felt myself starting to slip again. Feeling myself starting to withdraw more. Wanting to be alone and to be left alone. I'm trying to ignore/counter this as it's not good for anyone. I feel my anger sneaking back in. Ugh.

And also? Seroquel. FUCK Seroquel. I've had issues with drowsiness/grogginess/somnolence since I started it. I've had issues with my appetite since starting it (I've gained 17 pounds in around 13 weeks). And those two issues are getting progressively worse. It takes me around an hour to wake up in the morning and by midday I'm groggy and a little zombie like. The other thing, which has cropped up recently, is doing things in the middle of the night and not remembering them. The other night I kinda "woke up" standing in the closet with the light on - I have absolutely no recollection of getting up and walking into the closet. I don't remember waking up to go to the bathroom. If I tell hubby something after I've gone to sleep, I don't remember it. Now, maybe that part is only mildly annoying, but I would prefer for it not to get worse.

I see my psychiatrist in 2 weeks and I'm going to request that I go off of Seroquel. I'll start back up on the Geodon, whatever, I don't care. I didn't like the side effects of Geodon but they are preferable to the side effects of Seroquel. I have samples of 150mg Seroquel (I'm currently taking 300mg), so in a few days I'm going to drop my dose down - start to wean myself off. It's not like I felt a difference from when I was on 50mg vs 300mg.

So yeah. That's it. I'm frustrated. But what else is new, right?

Tuesday, June 3, 2014

So some shit happened

And by shit, I mean SHIT. Serious shit, y'all. And I'm going to write about it, and I'm going to be blunt and visceral and personal.

Because I'm lucky to be alive to be writing this.

Last week I came the closest I ever have to killing myself. And had I attempted, I probably would have completed. I had a plan and a backup plan. I had a backup plan to my backup plan.

If you know me, you wouldn't have known any of this. I hid it. I hid it as well as I could from everyone. Even my hubby and best friend. Why? Because if they knew then I couldn't carry it out. Now let me tell you something that may not make any sense - I don't want to die. I flat out don't want to die.

So why suicide . . . ?

I was put on a medication called Depakote. It's a mood stabilizer that was going to replace my lithium. I was started on a low dose - 1000mg. After 2 weeks I was more depressed. I was having some thoughts of death. And I knew it was the Depakote. I saw my psych doc and told him this. His response? No, it's not the Depakote, you need to go up on the dose. We're going to double it. I stared at him a minute. Seriously? I just told you I've had worsening depression since starting it! No, go up to 2000mg.

So I did. He knows what he's talking about, right? Wrong.

During the first week at 2000mg, I became obsessed with death and dying. I purposefully read books that centered around suicide - it was on my mind all the time. The thoughts were intrusive - I didn't want them there - I really didn't. They were disturbing. They were scary. I had my hubby lock up all of my meds.

My second week at 2000mg was the most horrific week of my life. I spent hours sobbing, curled in a ball on the floor, wishing I could just die. The pain was so bad I just . . . I needed to die.

If you've never been at this place, this place of utter terror and pain and despair, you'll never quite understand this. The pain is guttural, animalistic. It reaches into every fiber of your being. It hurts emotionally, mentally, and physically. While I cried, while I sobbed and wailed and screamed and pounded my fists, all I wanted was the pain to end. The torture to end. I hit my head against the wall. I burned myself with a cigarette lighter. I would have cut myself but the blades had all been locked up. There was no way I could go on like this. No way I could possibly continue to live like this. How could anyone? How could anyone be expected to live with this much pain?? Death was the only way out.

Last Wednesday night I told my hubby that it was a matter of when, not if, I would kill myself. I know I scared him. I was sobbing, laying on him, hurting and scared and tired. I was so tired. Tired of pretending. Tired of hurting. Tired of trying and having nothing work. I was tired. I told him that I wanted to die and that it was a good thing my pills were locked up. I knew I needed to go to the hospital then, but I didn't. He knew, but didn't press it.

Thursday morning was bad. I felt worse. But I had to press on, right? I had to take my son to his therapy session. And his therapist, upon seeing me, told me to call my therapist. I trembled. I knew I needed to be admitted but I needed someone to tell me that. I needed validation that it was okay. That I needed to be safe. I went into the bathroom and called my therapist, sobbing so hard I was almost incoherent. He told me what I needed to hear: go to the damn hospital.

And I did. I admitted myself on Thursday afternoon. Had I not, I would have overdosed on Geodon. One medication that isn't locked up because I take it every day. I have way more than enough to do the job. And had I not gone to the hospital, well . . . well those pills would have been down my throat.

I was discharged today, Tuesday. I'm still depressed. Damn depressed, actually. But I'm no longer suicidal. Depakote was the culprit in this - my first day off of it and the suicidal thoughts went away.

Last week I felt the worse that I ever have in my life. I never want to feel that way again. Ever. I can't. I came scarily close to killing myself. Closer than I ever need to come because I have wonderful friends and family.

I can't put into words the amount of pain I was in. I wish I could. I wish I could make you understand. But until you've been there, you can't possibly.

I'm alive. I'm going to Boston on Sunday to see the bipolar specialists and maybe get a new perspective. I'm trying to stay positive.

But I'm still so tired.

Wednesday, May 7, 2014

Changes

Because we need to shake shit up.

My changes are coming in the form of medication changes. Major ones. Namely, stopping lithium, stopping Wellbutrin, decreasing Lamictal by half, and adding Depakote. All pretty much at the same time. It's a possible recipe for disaster.

Why the changes?

Because I'm treatment resistant. Because my previous combo wasn't working. And because my psychiatrist sent me to a medication specialist because he no longer knows what to do with me. Said specialist thinks that I'm toxic on my lithium and made all of the above recommendations. So we'll try it out and see what happens. I'm nervous as my body doesn't seem to handle med changes very well. And all these changes at once . . . scares me.

The night before last, my first night taking Depakote, I didn't sleep. Well, maybe I got 1-2 hours. Yesterday I was irritable, angry, and depressed. I cried more times than I care to admit. Today I'm depressed yet apathetic. I can't focus. I don't care if I do anything or not. All I'd really like to do, honestly, is not exist. I don't want to die, really, just not exist.

Makes no sense, I know.

It's just that everything that used to give me pleasure doesn't anymore. My creative side - which has always been hugely important - is gone. Completely gone. Playing with my son is a chore - one I would rather avoid. And sex? Seems we're back to the no desire, no arousal, no orgasm phase. At work, at my job that I love, I find myself annoyed and irritable. I find it difficult to relate to or bond with my patients. I don't want to go out with friends.

I want to not exist.

Aside from being depressed, I'm unhappy. I want to be hypomanic. If I could just be hypomanic - controlled hypomanic - well, I don't even know. I'd want to be that way all the time. But that's not feasible or safe.

I need a reprieve from how I've been feeling for the last 2.5 years (and most notably since November). Hopefully this med change will be what I need. Hopefully it will stabilize me. Hopefully it won't make things worse. Time will tell.

Wednesday, January 15, 2014

The two parts don't match

They don't. Seriously.

I wanna take a minute and talk about jumping spiders and how they're cute little motherfuckers. No really.


How is this not adorable???

These are spiders that I'm not afraid of and will actively seek out.



They wear water droplets as hats.

What's not to love??? Adorable, harmless, and water droplet hats! Gimme *grabby hands*

You know what else is new? My body fucking hates Geodon. Not complete hate, but hate none the less. Eleven days ago Dr. C had me go from 80mg of Geodon to 120mg. Now, I had issues with drowsiness when I went up to 80mg so I wasn't too pleased but I said I'd do it. 

Dumb idea.

He told me to take 80mg at night and 40mg in the morning to help with the drowsiness. Totally didn't work. About an hour after taking the morning dose I would be so drowsy and groggy I couldn't stand. For 2-3 hours. I tried this for 6 days and it got progressively worse. So I switched to taking it all at night. This meant when I woke up I was so groggy I couldn't keep my eyes open - for about 2 hours. And if I woke up during the night to pee? I had better get it done fast because I'd get so groggy I couldn't walk. 

In addition to the debilitating drowsiness, grogginess and somnolence, I also had a host of other side effects: insomnia, racing thoughts at bedtime, a constant all-day headache, tachycardia (rapid heart rate) and PVCs (premature ventricular contractions - basically like palpitations). The tachycardia and PVCs happened about an hour after taking the 120mg dose and happened irregardless of what I was doing. My heart rate would be 140-150 just laying in bed. 

And that, my friends, is not good. Not good at all.

I was also incredibly irritable during this time. I think because of all the goddamned side effects and lack of sleep. 

So after 9 days I dropped myself back down to 80mg. The symptoms all were getting progressively worse so obviously my body can't handle 120mg of Geodon. 

The day after my first decreased dose, yesterday, was lovely. I woke up feeling more rested, no drowsiness at all, no headache all day, and my mood was greatly improved. Night and day difference!

I'm still having some insomnia - I have trouble falling asleep, takes now 1-2 hours (I'm the type of person who would be out within 10 minutes of my head hitting the pillow).  

But I'm feeling better and that's all that matters. 

I emailed Dr. C of course to let him know, and I see him Feb. 3. But I WILL NOT go back up on my dose. The side effects are unacceptable. 

See? The two parts don't match.



Friday, January 10, 2014

Sometimes I get annoyed with shit.

No really. I do. Like medication side effects for example. Like side effects that I continue to get from my damn Geodon. Makes me want to cut a bitch.

So here's what's up. Last Friday Dr. C had me increase my dose of Geodon from 80mg to 120mg. He told me to take 80mg at night and 40mg in the morning to stave off morning grogginess. I had been having morning grogginess at the 80mg dose, but it was starting to ease up.

Well, guess what happens when I take my morning dose of Geodon?

That's right. I get groggy. Drowsy. Sometimes so much so that I can't even stand. Seriously. Are you fucking kidding me, Geodon? I mean, what the actual fuck??

Today I decided that I'm not taking that extra 40mg in the morning any more. I'm going to take it all at night. See what that does. If I keep getting groggy like this . . . well, that's a deal breaker. I can't work like this.

Speaking of work, I'm not going back until the 27th at the earliest. I'm not ready. I'm emotionally and mentally exhausted. Just . . . exhausted. Then add in the medication side effects and the akathisia (got that too, joy) and it's a no go. I talked with my manager at length about everything and she supports me 100%. I don't need to worry about work.

Huge weight off my shoulders.

I have nothing else poignant to say. Nothing at all.

So bye.

Wednesday, January 1, 2014

The Obligatory New Year's Post

Happy New Year, blah blah blah.

I typically don't do new year's resolutions. Planning something on this day doesn't make it any more likely that you'll succeed than if you planned it on any other day. It's a day to make empty promises to yourself to make you feel better about yourself.

So let's get this show on the road. Here are my New Year's Lies To Myself:
1. I will not be funny.
2. I will not get better.
3. I will not shovel a shit ton of manure.

I think 3 is a respectable number of lies. Golly, I hope I live up tthem!! (that is sarcastic font by the way. Pretty snazzy, yeah? You're welcome.)

In other news, the Geodon seems to be reaching more therapeutic levels. I'm feeling better, not as much irritability or anger. Thank the baby DeJesus!! My sleeping is also starting to mellow out - not as much grogginess.

Yesterday I spent the day in Estes Park with my two favorite people (hubby and son - though I would've taken Tom Hiddleston . . .). I was calm, peaceful, and happy for the most part. I had a few moments where I could have lost my cool, but I kept it under wraps. Go me! *high fives self*

Driving home I did get a little hypo manic - racing thoughts, pressured speech, slight irritability. I had this idea for a painting of a wolf barfing out ravens. Hundreds of ravens. No, I don't know why - my brain is stupid. But there was this urgency in needing to get this painting done. Like, yesterday. Fuck everything I have to paint!! But after we got home I calmed down and the painting idea seemed a bit dumb. I had no desire to paint it. I'm sure if I remained hypo I would have stayed up however late necessary to finish it though.

Today I've been stable as well. Not as groggy this morning. My son and hubby wanted to teach me how to play Minecraft. Now, let me start by saying I don't play video games. My days of video games died out with the first playstation. I just don't play. So now we have my hubby and 6 year old trying to teach me how to use a controller with like 30 buttons. I don't even think I'm exaggerating.

I probably am.

But it feels like 30 buttons. That's the point. That, and I don't play video games. And Minecraft is boring (I've watched them play for a little bit before). But oh well, let's play.

No.

Not only no, but hell no.

I managed about 5 minutes of play before I felt like my whole world was going to crash down around me. Literally. I was instantly overwhelmed and anxious and felt like crying and hiding and giving up on life.

With this, I'm not exaggerating. What the fuck, self? Seriously? Seriously?? How fucking stupid is that? Here, have a controller. Noooooooooo! *runs screaming in other direction, sobs uncontrollably*   

I handed the controller to J and told them that I'd watch. It took me a half an hour to fully calm down. And this is why we can't have nice things.

That last bit didn't make sense, but I don't really care.

So I still get overwhelmed easily it seems. Which makes me worry for work. I'm taking an extra week off at the "suggestion" of J and my therapist. Neither of them feel that I'm ready to go back to work and that if I do, I'll end up sick again. Which is probably true. But pride people. I has it, and I hate missing yet another week of work.

But a controller to an Xbox 360 almost made me lose my shit. So I see their point.

Well played, brain. Well played.

Monday, December 30, 2013

Fuck you, Geodon

I'm exceedingly annoyed this morning. All because of Geodon. The med that is supposed to help me. The med that is supposed to manage my mixed episode and have fewer side effects than the other antipsychotics.

Well, fuck you.

The first night on it was horrible thanks to the drowsiness. But that passed and the next couple of nights were fine. Hooray! *throws confetti* But I had to increase my dose - from 40mg to 80mg. The next couple of mornings I was groggy. Not too bad, but enough to be mildly annoying.

Then I had a couple of mornings where I was very groggy. Like, barely-keep-my-eyes-open-for-more-than-a-few-minutes groggy. And one of these mornings I was dizzy, lightheaded and felt like I was going to faint.

For an hour.

Then, a good morning. Yay! My body is adjusting to the increased dose!

Nope. It's not.

Yesterday morning I was so groggy it was painful and was dizzy and lightheaded again. So I decided that I would take my Geodon earlier in the evening - I'd been taking it shortly before bed (and it wasn't making me drowsy after taking it anymore).

Boom. Done. Decision made.

Bad decision.

I took it at 7pm last night and by 8 I couldn't keep my eyes open. Literally. I was so fucking drowsy it was stupid. So, off to bed I go. I haven't slept the last 3 nights anyway, so I might as well turn in early.

It would have been okay if I was able to sleep. I laid in bed, to drowsy to physically or mentally function but I couldn't fall asleep. My mind was slowly racing. Lots of thoughts, just at a slower pace than when my mind usually races.

I was drowsy as fuck but I couldn't sleep.

I was already dreading bedtime since I hadn't been sleeping well. I was already dreading bedtime knowing how I'd feel in the morning. And now I get to dread bedtime knowing that the Geodon has decided to make me stupid drowsy again.

I eventually did fall asleep - probably around 10:30 or so. I woke up many times to pee (at least 5 after 10:30 - I went 4 times between 8 and 9). When I woke up this morning, however, I was wide awake. Thank the baby Jesus for small favors!!!

But now, what to do tonight? When should I take my meds? How will I sleep? How am I going to wake up? I'm seriously developing a phobia about bedtime thanks to this. I was in tears last night because I couldn't go to sleep. Because I was so fucking drowsy but I couldn't sleep. J doesn't know that part - the crying part. Well, until he reads this. Now he knows.

It's just so frustrating. I shouldn't have to deal with this. This, on top of still being in my mixed episode.

How the fuck am I supposed to function? How the fuck am I supposed to go back to work?