So I stopped my Zyprexa . . .

And HOORAY!!! My mixed episode is BACK! Full swing!
I was started on Zyprexa 3 weeks ago while I was in the hospital for mania from my mixed episode. I experienced VERY noticeable cognitive deficits - to where I didn't feel safe working (delivering babies). So I stopped taking the Zyprexa on my own without consulting anyone (because I'm a rebel, people).

It's been 5 days without it and my mixed episode is back. Sooooo excited. I randomly burst into tears, sobbing uncontrollably for 15-20 minutes. It passes in an instant and my mood moves on. Yesterday, in a delivery, hypomania struck. And it was bad. Like, if this family wasn't so awesome and did't think I was the most hilarious thing in the world and should do stand up comedy, I could have been suspended or FIRED bad. And I couldn't stop laughing.

At all.

I left the room in near hysterics because everything was just so damn FUNNY. And like I said, I'm lucky this family thought everything I said was hilarious - they loved me.. Thank God for small favors!

Like me being hilarious.

So I figured I ought to get help before I go completely off the deep end and end up in the hospital again. My pdoc is going out of the country tomorrow, but I was able to get an appointment today. Go me. I'm nervous because I know he'll want to do another antipsychotic and I have a feeling I'll have all the same side effects (the cognitive deficits weren't the only side effects - I also got a face and neck full of acne, insatiable hunger, gas . . . pretty freaking awesome stuff, if you ask me). And I just can't deal with all that.

But I'm guessing I have no choice. We'll see what he says. What I think I'd really like is a med holiday. Stop everything, detox, and start again. It's just that pesky 90-95% chance that I'll go completely psychotic off my meds. Maybe I'll be that 5-10% . . .

Probably not.

I'm also a bit hypo right now, so I'm enjoying myself greatly. Not like that. Get your mind out of the gutter.

I should be in bed . . .

I should be, but I'm not. I'm farting around on the computer until I get tired. My mind is racing but I am starting to get drowsy now.

Good.

I have an appointment with Dr. C tomorrow. I'm most definitely mixed again. And my hypomania is getting a bit out of hand. And by "a bit out of hand" I mean I almost lost it tonight. Almost uncontrolled hypo. At work. Yay.

I was hilarious, I really was. And that's the problem - making people laugh in that state just elevates me further. Which is not good. I'm not going to go into detail, not right now. Mainly because I actually am getting a little sleepy and so I want to take advantage of that.

I'm nervous about my appointment. I know Dr. C will want another antipsychotic. And I don't want another antipsychotic. Too many side effects. I'm going to talk to him about a drug holiday - which I'm sure will go over great since I would have about a 90% chance of going psychotic if I did that.

I still want to though. Because I'm an idiot. Apparently.

I'll write more later. I'm going to try to sleep, if my mind will let me.

Where am I now?

Revolution from dissolution, hypnotizing and demoralizing
Pressure of the future, too much for today
How many hours will I let slip away
Before I realize existing and living
Are not the same
Are not the same
      -MSMR

I'm not exactly sure where I am right now. Many places, I guess. I'm stuck, I know that much. Stuck and annoyed and frustrated. Frustrated because I'm coming back to square one.

Last Wednesday marked two weeks of being on the Zyprexa. Two weeks of subdued, controlled mania. Two weeks of "stability".

Two weeks of steady cognitive decline.

Yep. Cognitive decline. Noticeable cognitive decline. It started innocent enough. Shortened attention span, being a little more easily distracted. Nothing big, nothing to write home about.

But then it became insidious, permeating everything I do. My focus was gone. I couldn't concentrate. I was very easily distracted. Everything changed.

On Monday, at work, I was going over discharge instructions with a patient - something I have done literally thousands of times. I stopped mid sentence. I had no clue what I had just said. Or what I was doing. Or what I needed to do. Luckily I'm awesome and I recovered and carried on, the patients none the wiser of my folly.

But that's not like me.

And then it happened again. And my mind would wander off as I was speaking and then I would stop, a bit confused. I couldn't focus on my charting. If there were distractions I was done. I'd have to check over everything I had just entered.

I felt overwhelmed more easily. Things that would have never flustered me were now an issue.

This past week, my first week back at work, was difficult. Because of the above. What's wrong with me?

I noticed my typing changing. I leave letters out of words or switch them around. Those damn red squiggly lines that spell check loves? Almost every word. I have to go back an recheck everything. And now? Now I leave motherfucking WORDS out of sentences.

WORDS people. Who the fuck forgets to write words? While thinking they're there? Me. That's who *points to self*.

I can't work like this. I can't. So I made a decision: no more Zyprexa. Wednesday night was the first night I didn't take it. Thursday morning my cognition was a little better. But I happened to tell two friends who made me take the one I had in my purse for "breakthrough" mania. And I was worse in the afternoon.

So Thursday night and last night I didn't take it. I'm focusing a little better, my typing is a little better.

But my mood? My mood is now not better. It would seem I'm going back to being in a mixed episode. Yesterday at work I started the day hypomanic. Then I got irritable. Then I spent almost 20 minutes in the back room sobbing, crying the ugly cry, while filled with crippling despair and hopelessness. I was depressed for awhile, then down, then irritable, then hypomanic.

Today I've been cycling between feeling down and being irritable. Right now, as I write this, I want to hide. I want to be alone, in bed, under the covers, crying. It's what I want to do so badly but I can't. J and A are here and we're going to decorate our tree soon. It should be a happy time. It should be fun and I just want to hide away and not exist and not deal with the shit anymore.

This is so frustrating, you have no idea. I can take the Zyprexa and be stable mood wise but lose essential cognitive functioning (not to mention the insanely increased appetite and sudden appearance of about 5000 pimples). Or I can not take it and have my brain power but be mixed and unstable again.

Why the FUCK can't I just be okay??? Just okay. That's all I want. Just to be stable and okay. But I can't. I can't have that. I can't just be okay.

Why can't I just be okay? Please. . . 

I'm scared about what's going on, about these two choices I have in front of me. My choice, for now, is to not take the Zyprexa. I'm done with it. I can't do it. But this starts, again, the search for a different med to replace it, lest I want the mixed episode to worsen.

I'm not okay with either of these choices. I'm not okay with any of this. I'm not okay . . .

Please . . .

Boo

I'm at work, I'm irritable, I want to go home.

I also don't want to take my meds anymore.

Done.

Still Cycling

I'm still cycling. It's mild, but it's there. Which is annoying. Can't I just be better already?

Also:

On Nov. 20, the first day of my last hospitalization, I was started on Zyprexa (I was manic and delusional and it was decided that an antipsychotic is a good idea). This is my first time being on an antipsychotic.

Now, I've been having some slight cognitive decline over the last 2 years, but nothing to write home about. But since the 20th . . . sweet mother of GOD what the hell is going on?!?!

First - memory. I'm forgetting everything. EVERYTHING. Things that I know inside and out - forgotten. I've done discharge instructions with patients literally THOUSANDS of times, but now I stop mid sentence not knowing what the hell I was just saying or how I should proceed. It's gone. I just stand there like an idiot stumbling over what I'm trying to say.

Second - concentration and focus. Yeah, totally not there. I get distracted easily. I just can't seem to focus or concentrate AT ALL.

Third - typing. Yep. Typing. Cami, what the hell are you talking about? Well, when I type I randomly leave letters out of words. For no reason. I don't know if my brain is moving too fast for my fingers to keep up or if I'm just literally forgetting letters. (I had to go back and reread this several times to make sure it made sense).

I know some of this is the disease itself - I've had some of these cognitive deficits already. But they haven't been to this extent. And I've declined so quickly.

Could it be the Zyprexa? I'm thinking yes. I emailed Dr. C about it and I'm guessing we'll be taking me off of it (which I'm perfectly fine with).

How stupid is all this???

In Remembrance

No, this isn't about Paul Walker. That shit is annoying.

This post is for my dad. Thirteen years ago today he passed away at the young age of 43 from lung cancer. December 1, 2000. He was at MD Anderson in Houston, Texas, undergoing experimental chemotherapy. He had the most aggressive form of lung cancer and it had already metastasized to his vocal cords and brain when he was diagnosed. His battle with it lasted 6 short months.

I want to tell the story of my dad, my last memories of him. I don't know the proper timeline of events - I don't remember all of the details. And I want to do the story justice.

So I'll be writing about it off and on, and when I get a full story done, one that I'm happy with, I'll post it. My dad was an amazing man. He was my confidant and my champion. I was very much a daddy's girl and we put each other on a pedestal.

Dad, I love you and miss you. Thank you for watching over me, you're the best guardian angel a girl could have. 

  

My Poor, Befuddled Brain

That's right. Befuddled. I like that word. It's a good word. And under used too. We should change that . . .
Anyway, this is a little rant about my brain (Clancy. I named my brain Clancy. Don't judge). I've noticed a steady cognitive decline since last February (2013). That's when I was hospitalized the first time. My second hospitalization was last week, and it's gotten worse.

I have a hard time concentrating. I get distracted easily. I'm having memory issues (I don't remember who told me what, if I'm repeating myself, what did I need at the store?) - if I don't write it down, I tend to forget (this is soooooo not how I used to be). I get overwhelmed easily (again, NOT how I used to be).

I think this realization hit me hard tonight. So, it's Thanksgiving (but you knew that already, didn't you, you sly minx). My hubby and I decided to go to Walmart tonight for their 6pm "Black Friday on Thursday" sale. And guess what? It was bloody busy! Lots of people. Okay, fine, I'll deal (crowds have been making me anxious as of late). While standing in line, my sister called. I was trying to talk to her when I suddenly lost my ability to do anything. I'm not even joking. I was trying to concentrate on our conversation but there was so much going on. So many distractions and people and noises and lights and there's a screaming kid and that lady is being a bitch and what the hell did my sis just say?

It was too much. I babbled incoherently. Seriously. Words came out. Just words, no specific order. Let's just pretend that was a sentence. Yeah . . . that was TOTALLY a sentence. I finally stammered out that I would call her back when we left the store (we did, by the way, score a laptop for $278).

But, a couple years ago that wouldn't have phased me. At. All. And it's frustrating. I've started noticing little deficits here and there at work, too. That's not good. I'm an RN. I deliver babies. I have to be on top of the game. But it's creeping up there. Stupid Clancy. Clancy is an ass.

I know it's part of the disease progression. I know it can be side effects of the meds. But let's be honest - this shit is annoying. And it's affecting my typing!! OMG! WHY?? I mistype constantly!! And if my mind is racing . . . well, my fingers can't keep up. Lame.

Boom. Rant over.