Tuesday, December 2, 2014

3 weeks later . . .

It's been around 3 weeks since my last post. Why so long? Because I don't want to post negative post after negative post. I've written some, I've just never published them.

I saw my pdoc, oh, I don't know, 2.5 - 3 weeks ago? Something like that. She said that we should be able to manage my depression better. So she upped my seroquel from 300mg to 400mg. She said that on doses up to 300mg seroquel works on mania and as a sleep aid. At doses over 300mg, it works on mania and as an antidepressant. She's confidant that this will work. I see her again on the 17th.

Long story short, it's not helping much. My depression is still bad. Most days I battle with suicidal ideation. This past Saturday was particularly bad as I was actively suicidal and wanted to slit my wrists. Luckily hubby was with me all day. I didn't quite let on how bad I was though (I don't want to go back to the hospital).

I want to spend all my time sleeping. That way I don't have to deal with how I'm feeling. I've been reading a lot to escape too. And art. I've been drawing.

I'm really getting tired of this. This stupid depression. I'm trying so hard to stay positive and yet it beats me down. I tell myself over and over that life is worth living, but the majority of the time I don't feel that way. I do have good moments, sometimes even a pretty good day, but they're few and far between. It's mostly me trudging through, faking it, forcing myself to talk and interact. I had started pulling away from hubby and son and I talked to him about it - I can't let myself pull away.

I still feel distant though. I feel like a lie.

I'm trying not to talk about this much, to anyone really, because 1. I don't want to be a burden, 2. I don't want to seem selfish and self absorbed, 3. I don't want people to think I've brought this on myself, and 4. I'm hoping minimizing/ignoring/denying how I feel will help (I'm aware that this is not the best tactic and usually doesn't work - and yet I try it anyway).

I'm done for now. Maybe I'll write more later, maybe not. I'm trying not to go to in depth as I don't want to break down right now.

Ugh.

Tuesday, November 11, 2014

Well fuck . . .

So here's the scoop. My depression is kicking my ass. For reals. This past weekend was particularly bad - lots of crying, wanting to die, suicidal ideation. It was not pretty. Yesterday I spent the whole day alternating between reading and sleeping. Two ways to escape how crappy I was feeling. Today has been better - thank God.

All this got me thinking. About a lot of things. Where to start . . .

I'm not taking my Brintellix anymore (antidepressant). I've been on it for like 14 weeks now? Something like that. And the past 5 weeks I've been in a depression. I've been depressed despite my fancy antidepressant. So I stopped it. Might as well save myself $60 a month if I'm going to be depressed on it. I stopped it cold turkey and have noticed no ill effects.

But I still have this damn lingering depression. I see my pdoc tomorrow and I'm faced with a decision: do I start a different antidepressant? Or not? It's this decision that's had me thinking.

The past 3 years have been a struggle for me. No one would argue that, and if you read this blog you know this. The past 3 years I have fought against my diagnosis, never really accepting it. I've tried many different medications trying to "control" this illness and my moods, certain that once I had the right combo I'd be happy and never have to face my violent mood swings anymore.

Well that's not how bipolar disorder works. That's not how the medications work.

The medications are designed to manage the major mood swings. True mania, and, to a lesser extent, major depression (medications sadly don't do that well with bipolar depression). My combo of lithium, Lamictal, and Seroquel are doing what they're supposed to be doing - managing the huge swings. My hypomania has been virtually nonexistent since my hospitalization for it last November. The bipolar expert agreed that this was an excellent combo.

But then depression rears its ugly head. And these meds let it happen. So I try Brintellix. It starts to work, amazingly, it starts to work. But it caused crippling anxiety and I had to stop it. After a time, the depression came back. I had since switched from geodon to Seroquel so we went ahead and tried the Brintellix again. Guess what? I didn't have the same results that I did the first time. I didn't really get the anxiety, but I also didn't really get any benefit.

And so I stopped it. Four days ago.

My depression persists. So, do I ask my pdoc tomorrow about trying a different antidepressant? Part of me says YES! Try something! Maybe this will be the med that gets rid of your depression!!

Or maybe, like every antidepressant I've tried (6 of them), it won't make any real difference. Maybe I'm still in denial of my illness and I'm still convinced that it's more meds I need (even when I state, often, how I don't want to be on more meds). Maybe I'm still holding out hope that I'll reach that place of always being happy and never having to worry about my illness if I just have the right meds . . .

Like I stated in my last post, this is not how bipolar disorder works. I can be on all the meds and still cycle. That is the nature of the beast. This recent depression while on Brintellix proves it.

Part of me doesn't want to accept this.

I want it to be easy. Change a med, you're all good.

That's not how this shit works. Accept that.

I have to learn to accept that some days I might wake up suicidal for no apparent reason. Or that I may wake up feeling okay and stable and even. Or that maybe the hypomania will decide to come back. And that even though my meds manage most of the big swings, they don't manage all of them.

This illness is managed, not controlled.

I've been trying to remind myself of this - often. I'm trying to be mindful and stay in the present - not worrying over yesterday or how I may feel tomorrow. I mean come on - Sunday I was suicidal, yesterday apathetic, and today I'm okay. If that doesn't show you how quickly my moods can cycle, while on meds . . . (fun fact: my moods can cycle that quickly in hours).

So then what have I decided about seeing my pdoc? I'm not going to go on another antidepressant. I'm going to try managing without one. I don't have a good track record with them anyway. I'm going to do what I can to manage my illness on a day to day basis. Doing everything I've learned in therapy, exercising, eating well, and taking my other meds as prescribed (even though now and then I want to stop them all).

Bottom line, I have to accept my illness and work with it to truly manage it and thrive. I can't keep doing what I've been doing and expect different outcomes. I need to keep my head out of my ass. Besides, how can I help others with mental illness if I can't help myself?

Spoiler alert: I'm planning on switching to psychiatric nursing and going back to school to get my NP in psychiatry. More on that later.

Friday, November 7, 2014

Still feeling depressed

Yep. I'm still having depressive feels. Last Sunday was particularly bad and I broke down sobbing uncontrollably.

I've had a few "good" days this week ("good" meaning that I wasn't "badly" depressed - maybe just meh, or down). I've been trying to keep everything in perspective and we reiterated that in therapy this week.

Frustrated though.

Every day, even my "good" days, I struggle against my thoughts. Every day I constantly feel like I don't want to exist. That I want to curl in a ball and not exist. Every day I have these feelings and every day I fight these feelings.

Even though I'm stable, I still struggle daily.

This is the part of bipolar most people don't know about. The majority of people think that it's all about full blown mania or full blown depression. It's not. The extremes are, of course, the most notable and obvious. But most people with bipolar disorder don't spend most of their time in the extremes. We spend our time in mild depression or hypomania or mixed. And even when we're stable our moods can change suddenly, for apparently no reason. We may struggle with suicidal ideation even when we aren't in an episode. We may become so used to our extremes that anything other than that feels like apathy, like we have no emotions.

I'm not really sure where this is going. I'm just frustrated I guess. Tired of my underlying feels.

Wednesday, October 29, 2014

Some Frustration

Well. It's been almost a full month since I posted anything. It's not that I haven't had anything to write about, it's just that I haven't published it.

I've been very frustrated lately. See, I'm in a low grade depression. Chock full of apathy, negative thoughts, exhaustion, and feeling like I want to die - or at least not exist - because everything seems pointless. I often don't want to be around people or interact with them. I kinda don't want to be touched at times. I often want to sleep so that I don't have to deal with how I'm feeling.

I hate this.

I was triggered 2 weeks ago by something I read in one of my Al-Anon daily readers. It was about forgiveness. And it made me realize that I haven't forgiven my mom for her drinking. And that I can't separate her from the disease of alcoholism. I can't see her for the person she is. Anytime I come close, my walls shoot up. And they're tall, thick, and covered in barbed wire.

This trigger happened on Friday the 17th. Saturday the 18th I talked about it in Al-Anon. The following Wednesday (last Wednesday) I talked about it in therapy and then with hubby that night. I started grieving the relationship that I will never have with my mom. This, I think, is the first step in forgiving her and forming some kind of relationship (I hadn't spoken to her in over 3 months).

I then called her last Saturday and we talked for 30 minutes. It went well - better than I thought - and I decided that we can talk, but only on my terms. I'll have to wait and see how this goes.

But what's frustrating is this damn depression. I'm stable for fuck's sake!!! I shouldn't have to deal with this!!

Except that this is part of having bipolar disorder.

I can be triggered and go into a mood episode. Since I'm stable, this depressive episode isn't as bad as it could be. Which I should be thankful for. And I am. But I'm still fighting against how I think I should feel being stable (which is no swings, happy all the time, cheerful, energetic, possibly slightly hypomanic - this is unrealistic, I know, but it's my ideal), and how I actually feel.

My "should" is very unrealistic. I was starting to accept that. Starting to accept that I'll have mini swings (that are more extreme than the "normal" range of emotions). Starting to accept that my mood can still change at the drop of a hat and that I will never truly know what my mood will be like at any given moment. I was starting to accept that.

But then this depression happened, and it has hung around for 2 weeks, and everything that I was starting to accept goes out the window.

So I'm frustrated. I'm reminding myself daily that this is part of bipolar disorder, that I'm still way better than I have been, and that eventually it will pass. I'm doing all of the correct, positive things that I should be doing and that I've learned how to do in therapy. I'm trying to dig myself out of this hole. And I will. I know I will. Or at least I keep telling myself that.

Ugh. Stupid depressive feels.

Wednesday, October 1, 2014

It's been a bit . . .

So it's been almost 2 weeks since my last post. I haven't much felt like writing.

But I do today.

I've been on the Brintellix for around 3 weeks now. My anxiety had started to get bad 2 weeks ago and I was worried that it would get as bad as it was the last time I was on it. I've noticed, however, that over the last week the anxiety has lessened. It's there every once in awhile, but it's manageable and not terribly bothersome.

And that's good news, right?

Sad thing? The Brintellix isn't really helping my mood. Not like it did the last time I was on it. I've had one good day (last Sunday) - a day where I felt "normal", happy, and content with life. I was at work, it was busy, and I had fun. But every other day? Just like before going back on Brintellix.

What do those days look like?

An overall feeling of being "down". I'm withdrawn. I don't want to participate in life. I'd rather nap the day away so I don't have to feel what I'm feeling. And what I'm feeling is all muted - except for my anger. I'm quick to anger. Everything seems to irritate or annoy me. I want to be by myself - I don't want to interact with anyone - family included.

I'm doing what I can to counter these feelings - don't think I'm giving up, or giving in. I'm not. I'm forcing myself to be more positive and upbeat (I don't know how well that's working - I should ask friends and family about that). I'm not doing the negative things I used to do (catastrophizing, all or nothing thinking, shit like that). I'm trying my best to be mindful - to stay in the moment. I'm forcing myself to interact.

Here's the thing - I'm stable. I'm the most stable I've been in 3 years. I'm not having big swings. I'm not hypomanic, I'm not horribly depressed. Nope. Stable. And that's good. The last thing I need is to have a major swing and be hospitalized again. But this low level depression? I think that's my baseline. I think that I'm stuck here and that's just how it's going to be. I'll have a good day here and there and all the others I'm going to have to fight for. I really don't want to accept this, but I don't think I have any other choice.

But wait - there's more!

I've been trying hard to be more "present" at home, around hubby and son. I had been getting bad about ignoring them, taking them for granted, lashing out at them. And I've been trying to be better about it. I don't know how well I'm doing in that regard. Sadly, I've felt myself starting to slip again. Feeling myself starting to withdraw more. Wanting to be alone and to be left alone. I'm trying to ignore/counter this as it's not good for anyone. I feel my anger sneaking back in. Ugh.

And also? Seroquel. FUCK Seroquel. I've had issues with drowsiness/grogginess/somnolence since I started it. I've had issues with my appetite since starting it (I've gained 17 pounds in around 13 weeks). And those two issues are getting progressively worse. It takes me around an hour to wake up in the morning and by midday I'm groggy and a little zombie like. The other thing, which has cropped up recently, is doing things in the middle of the night and not remembering them. The other night I kinda "woke up" standing in the closet with the light on - I have absolutely no recollection of getting up and walking into the closet. I don't remember waking up to go to the bathroom. If I tell hubby something after I've gone to sleep, I don't remember it. Now, maybe that part is only mildly annoying, but I would prefer for it not to get worse.

I see my psychiatrist in 2 weeks and I'm going to request that I go off of Seroquel. I'll start back up on the Geodon, whatever, I don't care. I didn't like the side effects of Geodon but they are preferable to the side effects of Seroquel. I have samples of 150mg Seroquel (I'm currently taking 300mg), so in a few days I'm going to drop my dose down - start to wean myself off. It's not like I felt a difference from when I was on 50mg vs 300mg.

So yeah. That's it. I'm frustrated. But what else is new, right?

Tuesday, September 16, 2014

Just a quick update . . .

This is just a real quick update and I'll write a real post soon. I'm back on the Brintellix (you may remember that I was on it before around 3 months ago - it worked, my mood was getting so much better, but it gave me crippling anxiety). Well, the seroquel isn't doing much for my depression which is starting to get bad again (not suicidal bad, but I-don't-want-to-participate-in-life bad). It's taking a toll on hubby and son and so the decision was made to try Brintellix again. My pdoc is hopeful that the seroquel will help control the anxiety better than the geodon did. We'll see. I'm anxious as I type this so . . .

Friday, September 5, 2014

Booooooooooo

I'm not sure if I've posted about this particular topic before. So I'm gonna give some background info first:

You all probably know that my mom is an alcoholic. Has been one for as long as I can remember. I have vivid, negative memories of my childhood, being the caretaker often for my brother and my mom. Lots of baggage with this. I'm ACOA (adult child of an alcoholic). This brings numerous characteristics of behavior and maladapted coping (which goes along awesomely with being bipolar . . . that was sarcasm by the way). (I should also point out that she is in complete denial about her drinking. She could be pouring vodka in a cup, drink from it, and tell you that she doesn't drink. I'm not exaggerating)

I've been diagnosed with chronic PTSD because of my upbringing. My mom is a huge trigger for me (my therapist and I have been working on this intensely for the last month and a half or so). For the longest time I refused to talk to her after about 6pm. Why? Because she would most likely be drunk and I can't handle that. Talking to my mom when she's been drinking - even if she's not drunk - has a decidedly negative effect on me. Anger, frustration, helplessness, fear, guilt, and shame all flood me. I overreact emotionally, which can send me into a bipolar mood swing. That's not good.

While trying to work through all this in therapy she's become even more of a trigger for me. So that even getting a text from her (no matter what time of day) gives me all of those negative emotions and fills me with anxiety. My therapist suggested I do something drastic - cut my mom out completely. No texts, no phone calls, no emails. If I don't have to constantly battle my negative feelings, perhaps I could work more on recovery. Makes sense.

And was very inviting.

So I sent my mom an email outlining the restrictions. No contact unless I initiate it. If she wanted to know how I was doing she could enquire through my hubby (which he had said he was okay with). I explained why. I let her know that this wasn't permanent, but that I didn't know how long it would last. She sent me an email back letting me know how much this hurt her (a guilt tactic, which she had used often growing up - I have no doubt that this decision hurt her but she lays it on thick). She said she would honor my wishes.

It was going well for a couple of weeks. I was a little more relaxed. I'm dealing with a lot of guilt over this as I'm her daughter - I should be talking to her and checking up on her and being what a daughter is supposed to be (which my therapist told me I need to get over - he pointed out that I felt this way partly because I always felt that way growing up - I had an obligation to her).

And then last night happened.

She texted my hubby and let him know that she had gone to the hospital as she thought she had a blood clot (she had surgery for a broken ankle 8? 10? 12?  weeks ago and was in a cast and then a walking boot). She told him that she was home and okay and it wasn't a clot (whatever was going on was caused because she wasn't following her physician's orders and hadn't been wearing the walking boot like she was supposed to). She stated in her text that all she needed was me and that I wasn't there for her and it was bullshit (I read the text). All those icky, negative feels? They came flooding back. My sense of guilt and shame overwhelmed me. I didn't know what to do. I mean, she's my mom and I love her and I want to know that she's alright. But at the same time the thought of talking to her filled me with dread.

After much trepidation I decided to text her. Asked her how she was doing as hubby had told me about the trip to the hospital. It was a very brief exchange of texts. I told her if something major like this happened that she could contact me - I'm not heartless, I'm just trying to care for me and heal.

The exchange of texts, the feelings that flooded me . . . it was overwhelming. The hour of deliberation and texts left me completely exhausted. Literally. It was only 8pm and I was ready for bed I was so exhausted. How fucking stupid is that? And equally disturbing is that no one can really understand that.

How having to wrestle with my feelings and my mom can take everything out of me and leave me empty.

It is so. Fucking. Stupid.

I didn't tell my hubby that last night. I don't think he'd understand (sorry). And the not understanding coupled with the guilt and shame I was feeling would have really put me over the top. I was already fragile enough last night.

I fucking hate this.

Today I'm conflicted. I feel so guilty that I think I should just reinstate contact with my mom. Not because I want to - but because I feel obligated to do so. My therapist would very strongly advise against this (as does my best friend). I need to get myself healthy. I shouldn't engage with my mom until she's not such a strong trigger. I'm siding with no contact. I need time.

I just hate how shitty I feel.