Thursday, December 12, 2013

And so the REALLY annoying thing is . . .

. . . I want to see how sick I can get. How fucked up can I truly get?

Now, let me start by saying that this is not entirely true. I want to be better. I want to not have to deal with these constant mood swings. I want to feel normal.

Except that I don't.

This isn't some weird attention seeking thing going on here - let's get that straight. This is something, I think,  that almost every person with a chronic illness feels at some point. You've been through med change after med change after med change. You still feel like crap. Nothing you do seems to work. Everything starts to seem hopeless and pointless. Nothing has worked, so nothing will work.

It's frustrating. It's overwhelming. And it seems so much easier just to give up. Let the illness take you.

That's where I'm at. I've just made yet another med change - dropping Zyprexa and starting Latuda - hoping that this time it will work. That my mixed episode will finally end with minimal side effects from the meds. That for once, maybe, I'll feel okay.

I'll be honest - I'm not optimistic. I've been through this. Several times over the last 2 years (I've probably changed up my meds 10 times or so). I'm so fucked up, in fact, that my diagnosis has been changed from Bipolar 2 to Bipolar 1, ultra rapid cycling. I'm so fucked up, in fact, that my pdoc is trying to get me in to see the mood disorder specialists at Mass General in Boston. I'm so fucked up, in fact, my pdoc said that if I stopped my meds I would go psychotic - I would completely lose my shit.

And you know what? So be it. Let me completely lose my shit. Let me see how sick I can get. Am I really that fucked up? Am I really that sick?

Let's find out. Let's not take anything. Let's see what happens. Let the world sort it out for me.

But I can't do that. Because I don't want to do that. I have a family, a career. I have friends and obligations and hopes and dreams. And I don't want to do that. I want to get better.

I'm frustrated. I'm tired. I've exhausted my resources. I've done everything I'm supposed to do to get better. And still I struggle. Every day.

Every. Fucking. Day.

My friends are worried about me. Very worried, it seems. They see me from the outside. They see the swings, more so than I can I think.  I downplay this all. I wonder if I downplay it too much. I wonder if I'm already sicker than I think.

I worry, but I also don't care. What can I do about it anyway?

Nothing. That's what.

I'm having a hard time mustering up any feelings today. I'm flat but near tears. And that's it. My mood could change at any minute - and I don't know until it happens.

I don't even know how to explain how I feel - the turmoil and confusion and hopelessness and despair. The sadness. Breaking down sobbing for no reason but not being able to stop. And the pain in that - the emptiness and grief and pain that threatens to swallow you whole. So much so you want to die. In that instant you want to die.

But then the giddiness and excitement and outright joy. Feeling like I can take on the world and that I'm funnier and smarter and better than everyone. That I need to spend money and write and draw and paint and clean the house and run a marathon and do all these things right now and all at once! And they have to be done why don't you understand???

And the irritability. Oh the irritability. And anger and impatience. And this built up kinetic energy and hostility and the need to destroy something. Anything. Even if it means hurting myself severely. Snapping at my husband and son for the mere fact that they exist.

And I might cycle through these feelings ten times a day - or not much at all. They may be the extreme - the worst it could possibly be. Or it may be milder, a little easier to deal with. And the cycles come without warning, at the drop of a hat. One minute I'm okay and, literally, the next minute I'm not.

Does that make sense? Can you even fathom how difficult that is? To live every fucking day like that? To have it affect your family and your job? Your own sanity?

Can you understand why I want to give up? Why I want to throw in the towel and lose my shit? When nothing I do works? Does it make any sense at all?

I can't adequately convey what I'm feeling. I want to give up. I want to completely lose my shit.

But I want to get better. And I have to. So I guess I struggle the fuck on.

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